The Brownsword Group’s Managing Director spent last Sunday walking to raise money for the ‘Foundation for Prader-Willi Research’.
Prade-Willi Syndrome (PWS) is a genetic disorder affecting children; occurring in approximately 1 out of every 15,000 births. The common characteristics of PWS include small hands and feet, abnormal growth and body composition, hypotonia at birth, insatiable hunger, extreme obesity and intellectual disability.
Currently there is no cure for PWS, and research targets specific treatments for the most difficult symptoms of the syndrome, such as the insatiable thirst, to improve quality of life for those children affected. The eventual goal of the Foundation is to discover the cure for this debilitating syndrome.
The fund-raising walk started at the Fletcher’s Arms in Denton, and followed a 12.5 mile scenic route via 4 more ‘Almond Family’ pubs. It was a family event with more than 100 people attending; there were games at the start and finish line, water and juice offered at each pub (nothing stronger!) with lunch available along the way. The day finished with a celebration and party at the Hesketh Tavern in Cheadle.
For more information about the charity and PWS follow this link.